🅐🅛🅘🅒🅘🅐<p>New <a href="https://sunny.garden/tags/introduction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>introduction</span></a> post! </p><p>I'm Alicia and I'm a fibre artist (<a href="https://sunny.garden/tags/dyeing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dyeing</span></a> <a href="https://sunny.garden/tags/handspinning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>handspinning</span></a> <a href="https://sunny.garden/tags/felting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>felting</span></a> <a href="https://sunny.garden/tags/needlefelting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>needlefelting</span></a> <a href="https://sunny.garden/tags/weaving" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>weaving</span></a> <a href="https://sunny.garden/tags/crochet" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crochet</span></a> <a href="https://sunny.garden/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> <a href="https://sunny.garden/tags/upcycling" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>upcycling</span></a> <a href="https://sunny.garden/tags/sewing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sewing</span></a>) with interests in <a href="https://sunny.garden/tags/mandala" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mandala</span></a> <a href="https://sunny.garden/tags/art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>art</span></a> <a href="https://sunny.garden/tags/psychedelicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>psychedelicart</span></a> <a href="https://sunny.garden/tags/sacredgeometry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sacredgeometry</span></a> <a href="https://sunny.garden/tags/neurographicart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>neurographicart</span></a> and <a href="https://sunny.garden/tags/watercolors" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>watercolors</span></a>. </p><p>My family and I run a business called <span class="h-card" translate="no"><a href="https://mastoart.social/@Fibre2Fabric" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>Fibre2Fabric</span></a></span> where we dye all sorts of exotic <a href="https://sunny.garden/tags/fibre" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibre</span></a> <a href="https://sunny.garden/tags/yarn" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yarn</span></a>, and <a href="https://sunny.garden/tags/fabric" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fabric</span></a>. </p><p>I live in the country with my partner and our 6 <a href="https://sunny.garden/tags/cats" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cats</span></a>, 3 <a href="https://sunny.garden/tags/dogs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dogs</span></a>, <a href="https://sunny.garden/tags/snake" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>snake</span></a> and <a href="https://sunny.garden/tags/crestedgecko" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>crestedgecko</span></a> where I enjoy my many interests. (<a href="https://sunny.garden/tags/gardening" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gardening</span></a> <a href="https://sunny.garden/tags/plants" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>plants</span></a> <a href="https://sunny.garden/tags/herbalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>herbalism</span></a> <a href="https://sunny.garden/tags/fungi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fungi</span></a> <a href="https://sunny.garden/tags/music" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>music</span></a> <a href="https://sunny.garden/tags/ukulele" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ukulele</span></a> <a href="https://sunny.garden/tags/piano" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>piano</span></a> <a href="https://sunny.garden/tags/dancing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>dancing</span></a> <a href="https://sunny.garden/tags/flowart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>flowart</span></a> <a href="https://sunny.garden/tags/reading" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>reading</span></a> <a href="https://sunny.garden/tags/writing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>writing</span></a> <a href="https://sunny.garden/tags/tarot" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>tarot</span></a> <a href="https://sunny.garden/tags/poetry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poetry</span></a> <a href="https://sunny.garden/tags/haiku" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>haiku</span></a> <a href="https://sunny.garden/tags/cozygames" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>cozygames</span></a> and I'm getting more into <a href="https://sunny.garden/tags/opensource" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>opensource</span></a> / <a href="https://sunny.garden/tags/linux" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>linux</span></a>) </p><p>When I say flow art, I mean spinning props like <a href="https://sunny.garden/tags/hulahoop" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hulahoop</span></a> <a href="https://sunny.garden/tags/leviwand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>leviwand</span></a> <a href="https://sunny.garden/tags/puppyhammer" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>puppyhammer</span></a> <a href="https://sunny.garden/tags/poi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>poi</span></a> <a href="https://sunny.garden/tags/staff" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>staff</span></a> <a href="https://sunny.garden/tags/silkfans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>silkfans</span></a> <a href="https://sunny.garden/tags/firefans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>firefans</span></a> etc. </p><p>I love <a href="https://sunny.garden/tags/languagelearning" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>languagelearning</span></a>. I studied <a href="https://sunny.garden/tags/German" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>German</span></a> and <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> as a kid, took <a href="https://sunny.garden/tags/Japanese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Japanese</span></a> in uni, and I'm currently studying <a href="https://sunny.garden/tags/ASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ASL</span></a> <a href="https://sunny.garden/tags/Cree" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Cree</span></a> <a href="https://sunny.garden/tags/Tokipona" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Tokipona</span></a> <a href="https://sunny.garden/tags/Spanish" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Spanish</span></a> and <a href="https://sunny.garden/tags/Chinese" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Chinese</span></a>. I also dabble in <a href="https://sunny.garden/tags/French" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>French</span></a> and <a href="https://sunny.garden/tags/Latin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Latin</span></a> sometimes and I'm learning <a href="https://sunny.garden/tags/Greggshorthand" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Greggshorthand</span></a> to write faster. Cree is my favourite language and Spanish is my second. </p><p>I've been cursed since childhood with that lovely trifecta of <a href="https://sunny.garden/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://sunny.garden/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> and <a href="https://sunny.garden/tags/mcas" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mcas</span></a>. Healing slowly but surely. </p><p>Hope I get to meet even more cool people the algorithms would normally drown out on other social media sites. I love it here! </p><p><a href="https://sunny.garden/tags/intro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>intro</span></a> <a href="https://sunny.garden/tags/yeg" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>yeg</span></a> <a href="https://sunny.garden/tags/edmonton" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edmonton</span></a> <a href="https://sunny.garden/tags/alberta" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alberta</span></a> <a href="https://sunny.garden/tags/canada" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>canada</span></a></p>
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Chronic Illness Humor Funny<p>On Etsy as shirts, mug, sticker, and pin [ <a href="https://www.etsy.com/shop/ChronicIllnessTees?ref=dashboard-header&search_query=bastards" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/shop/ChronicIllnessTe</span><span class="invisible">es?ref=dashboard-header&search_query=bastards</span></a> ]</p><p><a href="https://mastodon.social/tags/joints" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>joints</span></a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.social/tags/jointhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhumor</span></a> <a href="https://mastodon.social/tags/jointmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointmemes</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedsmemes</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/arthritishumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>arthritishumor</span></a> <a href="https://mastodon.social/tags/arthritispain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>arthritispain</span></a></p>
Chronic Illness Humor Funny<p>my skeleton is being a real b*tch</p><p><a href="https://mastodon.social/tags/ra" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ra</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointpainhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpainhumor</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a></p>
Chronic Illness Humor Funny<p>My joints <br>“let me play you a beat”<br>*snap*<br>*crackle*<br>*pop*</p><p><a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhumor</span></a> <a href="https://mastodon.social/tags/jointpainhumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpainhumor</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritishumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritishumor</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a></p>
Sherri Koehler (she/her)<p>This winter I’ve asked my pain management doctor to help find a medication to help with the muscle tightness I experience due to hypermobility and cPTSD. One common muscle relaxer (non-benzo) medication I’d been taking for over a year really didn’t work; it never actually helped my muscles relax. I ended up very ill for a few weeks when I stopped taking it because none of the doctors or the pharmacists I talked to about this change advised me how to stop (lesson: when you start a new med ask the doctor and pharmacist if there are any cautions around stopping).</p><p>I tried a second medication that really didn’t really work either. The pain specialist agreed that it was disappointing and to make a follow up appointment. My primary care physician and I really hoped for her expert insight on this class of pharmaceuticals. This is not a class of drugs that my primary physician has expertise in.</p><p>I finally had the appointment today and the pain doctor suggested a YouTube channel about fibromyalgia.</p><p>Yes, you read that right. My primary care physician and I asked for specific help treating a symptom of hypermobility spectrum disorder and the doctor we turned to for expert advice said I should consider watching YouTube videos about fibromyalgia.</p><p>They said they didn’t want to suggest a medication because I _might_ have a hard time changing medications, since I got sick stopping a medication this past December. No, I don’t get to make that decision for myself, with my primary care physician, because the pain doctor decided for me. </p><p>At 55 I’m not sure if this is fully ageism, but it is the kind of projection of fragility that results in poor health outcomes due in large part to under treatment. I know this because I happen work to educate elders in self-advocacy in healthcare settings!</p><p><a href="https://toot.cat/tags/HSD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HSD</span></a> <a href="https://toot.cat/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/edsfunny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsfunny</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedsmemes</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a> <a href="https://mastodon.social/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlossyndrome</span></a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a></p>
Chronic Illness Humor Funny<p>on my Etsy store [<br><a href="https://www.etsy.com/shop/ChronicIllnessTees?ref=dashboard-header&search_query=disco" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">etsy.com/shop/ChronicIllnessTe</span><span class="invisible">es?ref=dashboard-header&search_query=disco</span></a> ] and RB [ <a href="https://www.redbubble.com/shop/ap/168788542" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">redbubble.com/shop/ap/168788542</span><span class="invisible"></span></a> ]<br><a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedshumor</span></a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.social/tags/hypermobility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hypermobility</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hedsmemes</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edshumor</span></a></p>
Tune of Hope<p>Here are my 3 good things of the day (February 11th 2025):<br>(Try to think yours as well, it can really help! 🤍 And if you want to, share them with me in the comments.)<br>- 3 good phone calls<br>- drawing some zen tangles <br>- a very good dessert </p><p><a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://mastodon.social/tags/audhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>audhd</span></a> <a href="https://mastodon.social/tags/gratitude" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gratitude</span></a> <a href="https://mastodon.social/tags/3goodthings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>3goodthings</span></a></p>
Tune of Hope<p>Here are my 3 good things of the day (February 10th 2025):<br>(Try to think yours as well, it can really help! 🤍 And if you want to, share them with me in the comments.)<br>- a phone call<br>- playing mobile games<br>- listening to music</p><p><a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://mastodon.social/tags/audhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>audhd</span></a> <a href="https://mastodon.social/tags/gratitude" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gratitude</span></a> <a href="https://mastodon.social/tags/3goodthings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>3goodthings</span></a></p>
illmarks <p></p><p>Symptom: Coat Hanger Pain</p> <p>I only learned about this term very recently, from yumpsuit on the Fediverse. Thank you so much for letting me know about it!</p><p>I am almost disproportionately thankful to have a handy description for letting people know what I’m feeling, as well as how to look for ways to try to mitigate the pain. Reading about Coat Hanger Pain resonated deeply, in a way similar to how I often feel when I get <a href="https://www.youtube.com/watch?v=uic_3vlI5BE" rel="nofollow noopener noreferrer" target="_blank">a diagnosis</a>: a feeling of relief, connection, community, and hope.</p><p>Many people who have not been chronically ill see a diagnosis as a negative. Indeed, many disabled people are never told their diagnoses, and are never told they are disabled. This needs to change, because as <a href="https://graniteandsunlight.wordpress.com/what-is-disability/#whatis" rel="nofollow noopener noreferrer" target="_blank">Granite and Sunlight</a> explained:</p><blockquote><p>Many people are disabled for a long time before they get a diagnosis which explains what is happening to them, and there is a resistance in the medical profession to giving long-term diagnoses, especially for young people and for women with chronic conditions which lack good treatment options, because of an outdated belief that labels are limiting and they don’t want people to ‘see themselves as disabled’. The fact they are already disabled, already struggling, is why disability justice advocates are trying to help medical professionals change their approach to this. Most people just want answers and context for what is happening to them – not having a name for it doesn’t mean it isn’t affecting their lives. Diagnosis gives people access to context, support and community who can help a person manage the condition better, but these are not built into the medical response to disability. Despite these delays, the person is still disabled all that time, and still needs access to the support and adaptations which can help them live good lives managing their conditions.</p></blockquote><p>For more information about this, I recommend Brianne of No End In Sight’s <a href="https://noendinsight.co/briannes-tedx-talk-disease-begins-before-diagnosis/" rel="nofollow noopener noreferrer" target="_blank">TEDx Talk, Disease Begins Before Diagnosis</a>.</p><p><a href="https://www.illmarks.com/symptom-coat-hanger-pain/" class="" rel="nofollow noopener noreferrer" target="_blank">https://www.illmarks.com/symptom-coat-hanger-pain/</a></p><p><a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/art/" target="_blank">#art</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/body-horror/" target="_blank">#bodyHorror</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-illness/" target="_blank">#chronicIllness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/chronic-pain/" target="_blank">#chronicPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/coat-hanger-pain/" target="_blank">#coatHangerPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/coathangerpain/" target="_blank">#coathangerpain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/disability-art/" target="_blank">#disabilityArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/disability-justice/" target="_blank">#disabilityJustice</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/dysautonomia/" target="_blank">#Dysautonomia</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/eds/" target="_blank">#eds</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/heds/" target="_blank">#heds</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/long-covid/" target="_blank">#longCovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/longcovid/" target="_blank">#longcovid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/medical-art/" target="_blank">#medicalArt</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/millionsmissing/" target="_blank">#MillionsMissing</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/neis/" target="_blank">#neis</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/neisvoid/" target="_blank">#NEISvoid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pots/" target="_blank">#POTS</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwlc/" target="_blank">#pwLC</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/pwme/" target="_blank">#pwme</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://www.illmarks.com/tag/spoonie/" target="_blank">#spoonie</a></p>
Kat🤯🤯STICK RACK🤯🤯 well I think it was ment for brooms 🤷🏼♀️ but for me it’s my sticks!! I mainly use the pink one and always have a spare in the car 😀<br>
Being physically fracked isn’t easy but you can be shiny and accessorise with all kinds of things 🤩<br>
<a href="https://pixelfed.social/discover/tags/eds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#eds</a> <a href="https://pixelfed.social/discover/tags/heds?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#heds</a> <a href="https://pixelfed.social/discover/tags/ehlersdanlos?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ehlersdanlos</a> <a href="https://pixelfed.social/discover/tags/ehlersdanlossyndrome?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#ehlersdanlossyndrome</a> <a href="https://pixelfed.social/discover/tags/hypermobile?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#hypermobile</a> <a href="https://pixelfed.social/discover/tags/bendy?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#bendy</a> <a href="https://pixelfed.social/discover/tags/dislocate?src=hash" class="u-url hashtag" rel="nofollow noopener noreferrer" target="_blank">#dislocate</a>
Chronic Illness Humor Funny<p>Source: seeking_Trad on insta<br><a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/jointpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointpain</span></a> <a href="https://mastodon.social/tags/jointhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointhealth</span></a> <a href="https://mastodon.social/tags/jointinflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>jointinflammation</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a></p>
Tune of Hope<p>Here are my 3 good things of the day (February 6th 2025):<br>(Think of yours as well, it can really help! 🤍 And if you want to, share them with my in the comments.)<br>- doing some online volunteer work<br>- playing a pc game <br>- having some nice snacks</p><p><a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://mastodon.social/tags/audhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>audhd</span></a> <a href="https://mastodon.social/tags/gratitude" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gratitude</span></a> <a href="https://mastodon.social/tags/3goodthings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>3goodthings</span></a></p>
Tune of Hope<p>Here are my 3 good things of the day (February 2nd 2025):<br>(Also, think about yours! It can really help.)</p><p>- managing to shower<br>- having a nice lunch<br>- reading for a bit</p><p>What are your 3 good things of the day? Share them with me in the comments!</p><p><a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pots</span></a> <a href="https://mastodon.social/tags/audhd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>audhd</span></a><br><a href="https://mastodon.social/tags/gratitude" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>gratitude</span></a> <a href="https://mastodon.social/tags/3goodthings" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>3goodthings</span></a></p>
Chronic Illness Humor Funny<p>Chronic Illness can be a pain in the connective tissue<br><a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>edsmemes</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ehlersdanlos</span></a> <a href="https://mastodon.social/tags/connectivetissue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>connectivetissue</span></a> <a href="https://mastodon.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <a href="https://mastodon.social/tags/sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sjogrens</span></a> <a href="https://mastodon.social/tags/mctd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mctd</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/connectivetissue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>connectivetissue</span></a> <a href="https://mastodon.social/tags/lupus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>lupus</span></a> <a href="https://mastodon.social/tags/mctd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mctd</span></a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>heds</span></a> <a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eds</span></a> <a href="https://mastodon.social/tags/sjogrens" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sjogrens</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>rheumatoidarthritis</span></a></p>
Inner Visioner<p>A late night thought for <a href="https://kind.social/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EhlersDanlos</span></a> zebras 🦓:</p><p>Used to get <a href="https://kind.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> reactions a lot with certain foods and drinks (inflammatory response) which made me feel lousy and warm or even overheated all year round. </p><p>So I cut them all out. But one unexpected reaction of cutting the offending items is I now feel cold most of the time.🥶😂 </p><p>Night all. </p><p><a href="https://kind.social/tags/ThingsThatMakeYouGoHmmm" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ThingsThatMakeYouGoHmmm</span></a> <a href="https://kind.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a></p>
Niamh Garvey<p>Came home after a tiresome trip to Dublin for medical appointment, and was feeling dreadfully tired and sore (due to <a href="https://mastodon.ie/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a> and <a href="https://mastodon.ie/tags/AutoimmuneArthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>AutoimmuneArthritis</span></a>) and rather sorry for myself. Cheered right up when saw this lovely book post of my Advanced Reader Copies of a book of essays by Irish autistic people that I had the honour of editing 🎉</p>
Varceptious<p>Adventure awaits! Gonna get out of the house on this cold day to go and see a friend. Definitely need to bring my <a href="https://veganism.social/tags/Rollator" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Rollator</span></a> with me though because I messed up my right knee hardcore. It popped and cracked really hard last night and now my knee barely can carry weight without shaking horribly. All I did was stand up and turn to walk around the couch!<br><a href="https://veganism.social/tags/hEDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hEDS</span></a> <a href="https://veganism.social/tags/Sublaxation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Sublaxation</span></a> <a href="https://veganism.social/tags/LooseyGoosyJoints" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LooseyGoosyJoints</span></a> <a href="https://veganism.social/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disabled</span></a></p>
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