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#mecfs

44 posts30 participants7 posts today
MEActNOW<p>WOW 🤯<br>Did you know that small fiber autonomic neuropathy in your limbs can correspond to dystomility in your GI tract? Check out this article from autonomic and GI experts exploring this important topic:</p><p><a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC9798202/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pmc.ncbi.nlm.nih.gov/articles/</span><span class="invisible">PMC9798202/</span></a></p><p><a href="https://mastodon.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Dysautonomia</span></a> </p><p><a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p><p><a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Tino Eberl<p>Beim fünften Runden Tisch in <a href="https://mastodon.online/tags/Berlin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Berlin</span></a> wurden Fortschritte im Umgang mit <a href="https://mastodon.online/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> vorgestellt.</p><p>Laut <a href="https://mastodon.online/tags/Gesundheitsminister" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gesundheitsminister</span></a> <a href="https://mastodon.online/tags/Lauterbach" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Lauterbach</span></a> zeigen erste Maßnahmen Wirkung, auch wenn es noch keine Heilung gibt. Besonders die <a href="https://mastodon.online/tags/Forschung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Forschung</span></a> in <a href="https://mastodon.online/tags/Deutschland" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Deutschland</span></a> hebt sich europaweit hervor.</p><p>73 Millionen Euro fließen in Versorgungsprojekte, weitere 45 Millionen in die Betreuung von Kindern und Jugendlichen. <a href="https://mastodon.online/tags/Pharmaunternehmen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Pharmaunternehmen</span></a> investieren laut Lauterbach bisher zu wenig.</p><p><a href="https://www.zdf.de/nachrichten/politik/corona-forschung-long-covid-lauterbach-100.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">zdf.de/nachrichten/politik/cor</span><span class="invisible">ona-forschung-long-covid-lauterbach-100.html</span></a></p><p><a href="https://mastodon.online/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.online/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a></p>
Tom Kindlon<p>Life shrinks with ME/CFS.<br>Found on the CFS community on Reddit</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>ScienceNorway: Almost no ME/CFS patients return to work</p><p><a href="https://www.sciencenorway.no/chronic-fatigue-syndrome-diseases-me/almost-no-me/cfs-patients-return-to-work/2482762" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencenorway.no/chronic-fatig</span><span class="invisible">ue-syndrome-diseases-me/almost-no-me/cfs-patients-return-to-work/2482762</span></a></p><p>Image is from the latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>Advocating the role of trained immunity in the pathogenesis of ME/CFS: a mini review <br><a href="https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2025.1483764/abstract" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">frontiersin.org/journals/immun</span><span class="invisible">ology/articles/10.3389/fimmu.2025.1483764/abstract</span></a></p><p>Hypothesis/review. "After an acute infection, long term changes are induced by epigenetic and metabolic changes in the hematopoietic stem cell system. The descendants from these stem cells are innate myeloid cells equipped with a more proinflammatory phenotype."</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>The Science for ME forum has published its first factsheet which gives an introduction to ME/CFS. It was created following extensive discussion among forum members.</p><p><a href="https://s4me.info/docs/WhatIsMECFS-S4ME-Factsheet.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">s4me.info/docs/WhatIsMECFS-S4M</span><span class="invisible">E-Factsheet.pdf</span></a></p><p>Factsheets on other topics related to ME/CFS are in the pipeline.</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>(Repeat from a few months ago)</p><p>Most Troubling Symptoms in ME/CFS &amp; Long COVID Patients. Bar graph shows the frequency of symptoms reported by patients with <a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a><br>(blue) &amp; <a href="https://disabled.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> (red)</p><p>From:<br>"Patient-Reported Treatment Outcomes in ME/CFS &amp; Long COVID"<br><a href="https://www.medrxiv.org/content/10.1101/2024.11.27.24317656v1.full.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">24.11.27.24317656v1.full.pdf</span></a></p><p><a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Naga<p>Jalan and Dragonlet will be out of town for most of a week in the near future.</p><p>We're engaging a carer for me.</p><p>Far and away the best applicant describes herself as working in <a href="https://weirder.earth/tags/ElderCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ElderCare</span></a>.</p><p>I'm 55.</p><p>And those are the skills I need, with my severe <a href="https://weirder.earth/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>.</p><p>Good and necessary that I'll have care, but feeling some kind of way about this</p>
Barbara Wimmer - shroombab<p>Ich weiß, dass nahezu alle Menschen da draußen ihr "normales" Leben wieder aufgenommen haben. Dass ihr da draußen lacht, weint, was trinkt, euch verabredet, bastelt, lötet, oder einfach Spaß habt. </p><p>Ich fühl mich wirklich gefangen in meiner Wohnung, die ich nur gegen einen schlimmen Preis (... starke Schmerzen &amp; Symptome) verlassen kann und gefangen in meinem Körper. An meinem Leben ist nichts mehr wie früher. </p><p>Damit hab ich sehr zu kämpfen.</p><p><a href="https://chaos.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a> <a href="https://chaos.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> <a href="https://chaos.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a></p>
Initiative #ProtectTheKids<p>"Wenn die Schule zum Sehnsuchtsort wird: So leben Kinder mit <a href="https://nrw.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>" - eine Reportage des SWR über eine betroffene Familie, deren zwei Kinder an <a href="https://nrw.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> leiden:<br>➡️<a href="https://www.tagesschau.de/inland/regional/badenwuerttemberg/swr-wenn-die-schule-zum-sehnsuchtsort-wird-so-leben-kinder-in-bw-mit-long-covid-100.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">tagesschau.de/inland/regional/</span><span class="invisible">badenwuerttemberg/swr-wenn-die-schule-zum-sehnsuchtsort-wird-so-leben-kinder-in-bw-mit-long-covid-100.html</span></a><br><a href="https://nrw.social/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a> <a href="https://nrw.social/tags/ProtectTheKids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ProtectTheKids</span></a></p>
Andy Leader<p>Me &amp; Alf. The powered wheelchair is a new thing. Walking even very short distances provokes an extreme fatigue that can now wipe me out for days <a href="https://mastodonapp.uk/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> Alf like a lift and I was pleased to oblige. <a href="https://mastodonapp.uk/tags/photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>photography</span></a> <a href="https://mastodonapp.uk/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a></p>
Tom Kindlon<p>2/</p><p>“The field of ME/CFS is ripe for clinical trials,” Lipkin, who directs the center, told Fierce Biotech in a March 19 interview. “These cuts have brought our work to a dead halt.”</p><p><a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>🧵<br>(US)<br>'It's just ugly': Federal funding cuts to Columbia University leave chronic fatigue [ME/CFS] research in limbo</p><p><a href="https://www.fiercebiotech.com/research/stuck-precipice-funding-cuts-leave-chronic-fatigue-field-dangling-edge-clinical" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">fiercebiotech.com/research/stu</span><span class="invisible">ck-precipice-funding-cuts-leave-chronic-fatigue-field-dangling-edge-clinical</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> </p><p>1/</p>
Broadwaybabyto<p>“We’ve been conditioned by society that pain is weakness. That being sick is something you can overcome by simply trying harder.”</p><p>You can’t “try harder” your way out of disability. It’s not a weakness or a moral failing.</p><p>It is one of the only minority groups you can join at any time. </p><p>Ableism forces us to hide our suffering. To smile through the pain and deliver a convincing “I’m fine”</p><p>My latest looks at what would happen if we stopped hiding, as well as ways you can support the disabled person in your life. </p><p><a href="https://www.disabledginger.com/p/why-are-chronically-ill-people-forced" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/why-are-c</span><span class="invisible">hronically-ill-people-forced</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/pain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pain</span></a> <a href="https://zeroes.ca/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fatigue</span></a> <a href="https://zeroes.ca/tags/disabiltiyrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabiltiyrights</span></a> <a href="https://zeroes.ca/tags/disabilityjustice" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityjustice</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Broadwaybabyto<p>Tomorrow is a gift that the chronically ill never get to receive. When you’re temporarily sick, you know that it’s going to improve. You can rest because you have the knowledge that the next day will be a little bit better. Each day there will be progress until you’re completely ‘fine’ again.</p><p><a href="https://www.disabledginger.com/p/why-are-chronically-ill-people-forced" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/why-are-c</span><span class="invisible">hronically-ill-people-forced</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityrights</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Tom Kindlon<p>3/<br>Here is another list of symptoms and their prevalence rates from a cohort with ME (n=420)</p><p>From: <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a>--a persistent enteroviral infection? E G Dowsett, A M Ramsay, R A McCartney, E J Bell. Postgrad Med J. 1990 Jul;66(777):526-30. pubmed.ncbi.nlm.nih.gov/2170962/ </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a></p>
Tom Kindlon<p>2/</p><p>Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS: Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath</p><p><a href="https://disabled.social/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://disabled.social/tags/MEeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEeps</span></a> <a href="https://disabled.social/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFSME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/NeuroME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NeuroME</span></a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <a href="https://disabled.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Tom Kindlon<p>I thought I would repost this to highlight again some of the many varied symptoms that can be found in <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a>/#ChronicFatigueSyndrome</p><p>Particularly relevant when similarities with the <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> presentation in some people are being missed</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>1/</p>
Lassitudor<p>Es ist hart, den Verfall eines Menschen mitzuerleben, der <a href="https://troet.cafe/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> hat. Vergessen der einfachsten Dinge, Sachen fallen herunter, alltägliche Handgriffe misslingen, wohl auf dem Weg zur Demenz. Ein anderer Mensch als der, den ich einst so stark empfunden und bewundert habe. Meine Frau. Und ich habe auch MECFS. Vielleicht habe ich noch einen kleinen Aufschub, aber wahrscheinlich das selbe Schicksal. Auslöser eine Pandemie, die viele nicht mehr wahrhaben wollen. <a href="https://troet.cafe/tags/PostCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovid</span></a></p>
Fatigatio e.V.<p>Zahlreiche Mitglieder des Fatigatio e.V. haben die Entstehung dieses Buches durch ihre Teilnahme an der ME/CFS-Studie des VIPH maßgeblich unterstützt. 💙</p><p><a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mastodon.social/tags/Fachbuch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fachbuch</span></a> <a href="https://mastodon.social/tags/Patientenversorgung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Patientenversorgung</span></a> <a href="https://mastodon.social/tags/Gesundheit" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gesundheit</span></a> <a href="https://mastodon.social/tags/Medizin" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Medizin</span></a> <a href="https://mastodon.social/tags/VIPH" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>VIPH</span></a> <a href="https://mastodon.social/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://mastodon.social/tags/Fortbildung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fortbildung</span></a> <a href="https://mastodon.social/tags/Fatigatio" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fatigatio</span></a> <a href="https://mastodon.social/tags/Hogrefe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Hogrefe</span></a></p><p>3/3</p>
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